collaborate PUBLICATIONS

FOUNDATIONAL COLLABORATE STUDIES

Reference	Setting	Respondents	CollaboRATE Version(s)	Comments	Article
Developing CollaboRATE: A fast and frugal patient-reported measure of shared decision making in clinical encounters (Elwyn et al. 2013)	Value	Value		Describes the development of CollaboRATE	PDF
The psychometric properties of CollaboRATE: A fast and frugal patient-reported measure of the shared decision-making process (Barr et al. 2014)	Value	Value		Describes the initial validation of CollaboRATE under experimental conditions	PDF
Developing and pilot testing a Spanish translation of CollaboRATE for use in the United States (Forcino et al. 2016)	Value		Value	Value	PDF
Evaluating CollaboRATE in a clinical setting: analysis of mode effects on scores, response rates and costs of data collection (Barr et al. 2017)					PDF
Using CollaboRATE, a brief patient-reported measure of shared decision making: Results from three clinical settings in the United States (Forcino et al. 2018)					PDF

TRANSLATIONS AND/oR VALIDATIONS BY OTHERS

Reference	Setting	Respondents	CollaboRATE Version(s)	Comments	Article
Shared decision making in Swedish community mental health services – an evaluation of three self-reporting instruments (Rosenberg et al. 2016)	Value	Value	Value		Abstract
Adapting and validating the generic instrument CollaboRATE TM to measure women’s participation in health related decision-making during the reproductive process (Bravo et al. 2018)					PDF
Validation of CollaboRATE and SURE – two short questionnaires to measure shared decision making during CPAP initiation (Broström et al. 2019)					PDF
Measuring shared decision-making in the pediatric outpatient setting: Psychometric performance of the SDM-Q-9 and CollaboRATE among English and Spanish speaking parents in the US Midwest (Hurley et al. 2019)					Abstract
Translation, transcultural adaptation, and validation of two questionnaires on shared decision making (Ruiz Yanzi et al. 2019)					PDF
Comparison of three measures of shared decision making: SDM Process_4, CollaboRATE, and SURE Scales (Brodney et al. 2019)					Abstract
Measuring patient-reported shared decision-making to promote performance transparency and value-based payment: Assessment of CollaboRATE’s group-level reliability (Forcino et al. 2020)				Value	PDF
Psychometric evaluation of the Chinese version of the Decision Regret Scale (Xu et al. 2020)					PDF
Assessment of shared decision-making in community mental health care: Validation of the CollaboRATE (De las Cuevas et al. 2020)					PDF
Assessment of shared decision making in pediatrics: Developing German scales for patients aged 7–18 years, parents and parent-proxy reports (CollaboRATEpediatric) (Herrler et al. 2021)				Value	Abstract
Assessing the extent of shared decision making in pediatrics: Preliminary psychometric evaluation of the German CollaboRATEpediatric scales for patients aged 7–18 years, parents and parent-proxy reports (Herrler et al. 2021)				Value	Abstract

EMBEDDING OF COLLABORATE IN OTHER INSTRUMENTS

Reference	Summary
Validation of the Rainbow Model of Integrated Care Measurement Tools (RMIC-MTs) in renal care for patient and care providers (Valentijn et al. 2019)	Describes the development of the RMIC-MT Patient Version, a measure of patient perspectives on care integration that incorporates CollaboRATE
Patient Perceptions of Deprescribing (PPoD): Survey development and psychometric assessment (Linsky et al. 2017)	Describes the development of the Patient Perceptions of Deprescribing (PPoD) Instrument, a measure of patient attitudes and experiences related to medication discontinuation that incorporates CollaboRATE
The Patient Perceptions of Deprescribing (PPoD) Survey: Short‑Form development (Linsky et al. 2020)	Describes the development of the Short-Form Patient Perceptions of Describing (SF-PPoD) Instrument, a measure of patient attitudes and experiences related to medication discontinuation that incorporates an adapted version of CollaboRATE

OTHER COMPLETED STUDIES

Reference	Setting	Respondents	CollaboRATE Version(s)
Evaluation of a program for routine implementation of shared decision-making in cancer care: results of a stepped wedge cluster randomized trial (Scholl et al. 2021)	Value
PARTNER-MH, a peer-led patient navigation intervention for racial and ethnic minority veterans in Veterans Health Administration (VHA) mental health services: A mixed-methods randomized controlled feasibility trial study protocol (Eliacin et al. 2021)
The PROMova study comparing active and passive use of patient-reported outcome measures in ovarian cancer follow-up: effect on patient-perceived involvement, satisfaction with care, and usefulness (Stolberg Kargo et al. 2021)
Lessons in integrating shared decision-making into cancer care (Dahl Steffensen et al. 2018)
Enhancing shared decision making through carefully designed interventions that target patient and provider behavior (Tai-Seale et al. 2016)
What are the decision-making preferences of patients in vascular surgery? A mixed-methods study (Santema et al. 2017)			Value
OpenNotes and shared decision making: a growing practice in clinical transparency and how it can support patient-centered care (Fossa et al. 2018)
“I think that everybody should be involved”: What informs experiences of shared decision-making in supporting people living with schizophrenia spectrum disorders? (Carrotte et al. 2021)			Value
Supporting shared decision-making about cardiopulmonary resuscitation using a video-based decision-support intervention in a hospital setting: a multisite before–after pilot study (You et al. 2019)
Patient activation as a pathway to shared decision-making for adults with diabetes or cardiovascular disease (Poon et al. 2020)
Can goal-setting for patients with multimorbidity improve outcomes in primary care? Cluster randomised feasibility trial (Ford et al. 2019)
Designing and evaluating a prediabetes shared decision aid (Careyva et al. 2020)			Value
Risk communication after health care exposures: An experimental vignette survey with patients (Elwy et al. 2021)
A questionnaire-based study to investigate the extent of shared decision-making during consultations in out-of-hours primary care (Finnikin et al. 2019)
Patients’ perspective on shared decision‑making in urology: a prospective study at a university hospital (Grüne et al. 2021)
A multisite randomized controlled trial of a patient-centered ventricular assist device decision aid (VADDA Trial) (Kostick et al. 2018)
RightPath: a model of community-based musculoskeletal care for children (Smith et al. 2020)
Patient decision-making and regret in pilonidal sinus surgery: a mixed-methods study (Strong et al. 2021)
Assessing shared decision-making in cystic fibrosis care using CollaboRATE: A cross-sectional study of 159 programs (Homa et al. 2021)
The Appalachia Mind Health Initiative (AMHI): A pragmatic clinical trial of adjunctive internet-based cognitive behavior therapy for treating major depressive disorder among primary care patients (Bossarte et al. 2021) [Preprint]
Assessing patients’ perceptions of clinician communication: Acceptability of brief point-of-care surveys in primary care (Dryden et al. 2020)
Patient-provider communication about medication cost in rheumatoid arthritis (Kaal et al. 2021)
Preparedness and support, not personality, predict satisfaction in unplanned caesarean births (Miron-Shatz et al. 2020)			Value
Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors (Albon et al. 2021)
Shared decision-making in advance care planning for persons with dementia in nursing homes: a cross-sectional study (Goossens et al. 2020)
An international comparison of factors affecting quality of life among patients with congestive heart failure: A cross-sectional study (Roy et al. 2020)
A randomized controlled trial evaluating the BREASTChoice tool for personalized decision support about breast reconstruction after mastectomy (Politi et al. 2020)
Physician–patient interaction and medication adherence in lupus nephritis (Georgopoulou et al. 2020)
ePRO-based individual follow-up care for women treated for early breast cancer: impact on service use and workflows (Lundgaard Riis et al. 2021)
Preferences for treatments to prevent rheumatoid arthritis in Canada and the influence of shared decision-making (Harrison et al. 2020)
Patient decision aids improve decision quality and patient experience and reduce surgical rates in routine orthopaedic care: A prospective cohort study (Sepucha et al. 2017)
A multi-centred sequential trial comparing PEGASUS, an intervention to promote shared decision making about breast reconstruction with usual care (Paraskeva et al. 2021)
Randomized control trial evaluating the use of a shared decision‑making aid for older ventral hernia patients in the Geriatric Assessment and Medical Preoperative Screening (GrAMPS) Program (Kushner et al. 2021)
Is shared decision-making associated with better patient-reported outcomes? A longitudinal study of patients undergoing total joint arthroplasty (Chrenka et al. 2022)

ONGOING STUDIES